Hey @kyrstin, I was just thinking of your previous question on this and I am so glad you chimed in here! Without giving any patient identifiers, I’m really curious what specific sensory changes you are seeing?
We recently talked about post concussion syndrome and in my reading I was surprised how much the condition overlapped with POTS, which is something that I’m pretty sure I had. I had horrible vision changes and light sensitivity…(I actually still do), but my neuropthamologist suggested that I switch from contacts to glasses, and for some reason that made it much more bearable.
Anyways, I guess I’m just curious if there is some adaptation like that that we could help you brainstorm.
Im also curious whether @bryden or @DevonCochrane have any insight, since they might be more familiar with adult sensory changes?
Oh, and one more thought: Do you have access to the Adult Sensory Profile? They only research we’ve looked at in the Club about adult onset of sensory changes was actually related to psychosis… apparently lots of people experience sensory changes as a precursor to psychosis, and the Sensory Profile was the assessment they used in research to track the changes. (I’m not implying psychosis in your patient! Just saying that that is the preferred assessment we’ve seen in adult onset sensory changes )